Wednesday, November 2, 2011

Latest Update - Addendum

Please pray that God will be at work mightily in our baby's heart tonight.

Following on from the scan earlier today, there's going to be a case conference tomorrow (Thursday) morning between the paediatric and adult cardiologists to determine the best way forward. Two of the options mentioned are to put Petrina onto the most potent of the drugs that I referred to previously, or to do what I assume (there I go assuming things again) will be some sort of microsurgery so that they can inject something (unnamed but I assume [again!] one of the more benign drugs that she's already on) directly into baby's cord or thigh.

From what I've gathered, part of the issue is that all these drugs take a while to work, and the paediatric cardiologist only has 8 or 9 weeks at the absolute outer limit to find the treatment that's effective in our case. Probably only 1/3 to 1/2 that time to find the treatment so that it's still got time to be effective.

Petrina and I were talking about it earlier this evening and we're in amazingly thankful awe of the treatment that she and baby are getting. We couldn't wish for better care. It wasn't our choice to need it - but we're thankful to have a tertiary hospital only 5 minutes down the road.

The question of why hasn't reared its head yet, but it will in time. Thinking about it for a moment just now, it occurs to me that it may be a case like that of the man born blind, and the purpose is that God will be glorified. Or it could be more like Job, who as far as I know never found out why those things happened in his life.Link

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